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Research Data UMC Utrecht

Research Data UMC Utrecht

UMC Utrecht operates at the forefront of open science. Reuse and reproducibility are the main purposes of having research data available. Throughout the research cycle, the quality and durability of research data is ensured by our researchers through careful research data management. 

As open as possible, as closed as necessary

Making relevant data fully FAIR (Findable, Accessible, Interoperable and Reusable) and also open wherever viable (duly respecting constraints of privacy, sensitivity and intellectual property rights) is part of the UMC Utrecht research data management policy and is also required by many funders and journals. The principle “as open as possible, as closed as necessary” is valid here. In line with this, our researchers adhere to our Data Sharing Guidelines

UMC Utrecht Research Data

DataverseNL is the preferred data repository for researchers of the UMC Utrecht to publish datasets of finished parts of studies or research projects. Datasets can thus be found through most commonly used search engines.  

Also, our datasets can be found at domain-specific repositories, such as the Genome-phenome Archive (EGA), and the European Nucleotide Archive (ENA). For other repositories we refer to re3data.

Data Request Form uitklapper, klik om te openen

Everybody is welcome to request for our data. For this please fill in our Data Request Form. By Filling out the Data Request Form you give us your consent to process your personal data and the information that is submitted to handle your request. We shall keep all information confidential and process the data in accordance with the GDPR. 

When your request is approved, the appropriate license CC-BY, CC0, UMC Utrecht License or Data Sharing Agreement needs to be concluded, depending on the classification of the data. UMCU will determine the appropriate license. Please make sure in advance that you can agree to these terms and conditions. The Data Sharing Agreement template we use has been set up in conjunction with legal advisors of all Dutch academic hospitals. 

> Data Sharing Agreement (under DTA in English) 

Data Request Procedure

The principle investigator (or responsible person) of the dataset will decide if (and under what restrictions) the research data can be shared. A data access committee will determine whether the data is reused with correct ethical and legal basis (including privacy), and if it is compliant with our quality norms. Depending on the dataset and the request, the handling of your request can take 1 to 6 weeks. Both the fact that your request has been received and whether or not it is granted, will be communicated to you. If you have any questions about the procedure please contact: datamanagementumcu@umcutrecht.nl 

Data Reuse

Research data can either be visited by or transferred to you. 

Data visiting is preferable when a researcher wants to actively collaborate with you, or when the dataset is not static but constantly being updated. The dataset will remain at UMC Utrecht, but you will be authorized access by making use of our Digital Research Environment (DRE)

Data transfer is preferable when a static dataset can be used by the requesting researcher.  Per dataset and/or request, the researcher decides how active the collaboration will be, varying from ‘no collaboration needed’ to ‘strong collaboration desirable’. An indication can be found with the dataset in DataverseNL. 

Data transfer outside the EEA

EU data protection rules apply to the European Economic Area (EEA), which includes all EU countries and non-EU countries Iceland, Liechtenstein and Norway. To the extent Personal Data is transferred outside the EEA or processed in another country which does not offer an adequate level of protection, such transfer needs to be carried out in accordance with the requirements under GDPR, in particular Chapter V GDPR. Unless otherwise provided for by GDPR (e.g. by an adequacy ruling or derogation under Article 49 GDPR), the EU Standard Contractual Clauses (SCC) are applicable and need to be signed. These SCC will act as the appropriate safeguard and legal basis for transfer of Personal Data to a country outside EEA under the GDPR.

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