dr. M. (Marjolijn) Ketelaar

dr. M. (Marjolijn) Ketelaar

Associate Professor
dr. M. (Marjolijn) Ketelaar
  • Revalidatiegeneeskunde Onderzoek

Research Programs



Marjolijn Ketelaar is Associate Professor at the Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat Rehabilitation (, and Scientist at CanChild, Center for Childhood Disability Research, McMaster University, Hamilton, Canada (

Leader of research program on Family Empowerment and Program leader Pediatric Rehabilitation Research.

Her research interests include family-centered services, and the role of the family in the development of children with disabilities, with a focus on Brain Based Developmental Disabilities (e.g., Cerebral Palsy) and neuromuscular diseases (e.g., SMA).

She strongly believes in collaboration with patients, families, clinicians, and service providers in all stages of the research cycle, to optimise relevance and usefulness of research, and to improve clinical practice.

This is one of the main purposes of CP-Net, a network of parents and persons with CP, clinicians and researchers, she has founded founded in 2014, together with M. Klem (director patient organisation BOSK), Prof. J.G. Becher, Professor in Pediatric Rehabilitation Medicine.

She is the national coordinator of the Dutch research program PERRIN, studying the development of activities and participation of children and youths and adults with cerebral palsy





Research line

Neurodevelopmental disorders

Most recent key publications


Smits DW, Gorter JW, Riddell CA, Voorman JM, Rosenbaum PL, Palisano RJ, Walter SD, Hanna SE, van Wely L, Ketelaar M. Mobility and self-care trajectories for individuals with cerebral palsy (aged 1-21 years): a joint longitudinal analysis of cohort data from the Netherlands and Canada. Lancet Child Adolesc Health. 2019 Jun 6. pii: S2352-4642(19)30122-1. doi: 10.1016/S2352-4642(19)30122-1. [Epub ahead of print]


Gorp M van, Van Wely L, Dallmeijer AJ, de Groot V, Ketelaar M, Roebroeck ME; Perrin-Decade study group. Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Dev Med Child Neurol. 2019 Feb;61(2):194-203. doi: 10.1111/dmcn.14004.


Wintels SC, Smits DW, van Wesel F, Verheijden J, Ketelaar M; PERRIN PiP Study Group. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect. . 2018 Dec; 21(6):1024-1034. doi: 10.1111/hex.12796.


Ketelaar M, Bogossian A, Saini M, Visser-Meily A, Lach L. Assessment of the family environment in pediatric neurodisability: a state-of-the-art review. Dev Med Child Neurol. 2017 Mar;59(3):259-269.


Alsem MW, van Meeteren K, Verhoef M, Schmitz MJWM, Jongmans MJ, Meily-Visser JMA, Ketelaar M. Co-creation of a digital tool for the empowerment of parents of children with physical disabilities. Research Involvement and Engagement 2017 Dec 11;3:26.


Kruijsen-Terpstra AJA, Ketelaar M, Verschuren O, Gorter JW, Vos RC, Verheijden J, Jongmans MJ, Visser-Meily JMA, LEARN 2 MOVE 2-3 Study Group. Efficacy of three therapy approaches in pre-school children with cerebral palsy: A randomized controlled trial. Dev Med Child Neurol. 2016; 58: 758-766.


Ketelaar M, Gorter JW, Westers P, Hanna S, Verhoef M. Developmental trajectories of mobility and self-care capabilities in young children with cerebral palsy. J Pediatr. 2014 Apr;164(4):769-774. 

Side Activities

  • Board member of CP-Net (2013 – present)

  • Member of the Scientific Advisory Committee for CHARM, Research Centre for Habilitation and Rehabilitation Models & Services; University of Oslo, Norway

  • Member of the board for the Guideline Spastic Cerebral Palsy;  Nederlandse Vereniging van Revalidatieartsen, 2015

  • Member of the Steering Committee CP-Register Netherlands. VUMC Amsterdam and BOSK (2016 – present

  • Regular reviewer for several international journals (including Developmental Medicine and Child Neurology; Child: Health, Care and Development; Disability and Rehabilitation; BMC Pediatrics; BMJ Open) and for several national and international foundations/granting agencies.

  • Former Board member of Scientific Committee European Academy of Childhood Disability (EACD) (2010-2017)

  • Former Board member of Dutch Academy of Childhood Disability (Dutch-ACD) (2011-2016)


Fellowship and Awards

- "Hoofdprijs" BCRM 2017. Outreachprijs speerpunt Hersenen UMC Utrecht. 

- KFA Price Innovation in Pediatric Rehabilitation (2010)

- ZonMw grants (Main applicant), 2000, 2004, 2007, 2010

- ISED Institute for the Study of Education and Human Development: Best scientific paper (1999)

Research Output (221)

Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability:protocol of a scoping review

Nguyen Linda, Bootsma Jael, Di Rezze Briano, Jack Susan, Ketelaar Marjolijn, Gorter Jan Willem 7 jul 2021, In: BMJ Open. 11 5 p.

Professionals' motivation to support parental self-management regarding children with physical disability in Dutch rehabilitation services:‘Please mind your gap’

Wong Chung R W, Willemen A M, Voorman J M, Ketelaar M, Becher J G, Schuengel C 20 mei 2021, In: Child: Care, Health and Development. 47 , p. 685-696 12 p.

Prognostic value of brain abnormalities for cognitive functioning in cerebral palsy:A prospective cohort study

Moll Irene, Voorman Jeanine M, Ketelaar Marjolijn, van Schie Petra E, Gorter Jan Willem, Lequin Maarten H, de Vries Linda S, Vermeulen R Jeroen 16 mrt 2021, In: European Journal of Paediatric Neurology. 32 , p. 56-65 10 p.

Patient and public involvement of young people with a chronic condition:lessons learned and practical tips from a large participatory program

van Schelven Femke, van der Meulen Eline, Kroeze Noortje, Ketelaar Marjolijn, Boeije Hennie 30 sep 2020, In: Research involvement and engagement. 6 , p. 1-13

Understanding the essential components and experiences of youth with autism spectrum disorders in peer mentorship programmes during the transition to adulthood:a qualitative meta-ethnography

Nguyen Linda, Jack Susan, Ketelaar Marjolijn, Di Rezze Briano, Soper Alice Kelen, Gorter Jan Willem 25 aug 2020, In: Child: Care, Health and Development. 46 , p. 667-681 15 p.

Prediction of psychological distress among persons with spinal cord injury or acquired brain injury and their significant others

Scholten Eline W M, Ketelaar Marjolijn, Visser-Meily Johanna M A, Roels Ellen H, Kouwenhoven Mirjam, Post Marcel W M, 26 jun 2020, In: Archives of Physical Medicine and Rehabilitation. 101 , p. 2093-2102 10 p.

Self-efficacy predicts personal and family adjustment among persons with spinal cord injury or acquired brain injury and their significant others:A dyadic approach

Scholten Eline W M, Ketelaar Marjolijn, Visser-Meily Johanna M A, Stolwijk-Swüste Janneke, van Nes Ilse J W, Gobets David, Post Marcel W M, 22 jun 2020, In: Archives of Physical Medicine and Rehabilitation. 101 , p. 1937-1945 9 p.

Designing a tool to support patient and public involvement in research projects:the Involvement Matrix

Smits Dirk-Wouter, van Meeteren Karen, Klem Martijn, Alsem Mattijs, Ketelaar Marjolijn 16 jun 2020, In: Research involvement and engagement. 6 , p. 1-7

Appraisals and coping mediate the relationship between resilience and distress among significant others of persons with spinal cord injury or acquired brain injury:a cross-sectional study

Scholten Eline W M, Simon Julia D H P, van Diemen Tijn, Hillebregt Chantal F, Ketelaar Marjolijn, Woldendorp Kees Hein, Osterthun Rutger, Visser-Meily Johanna M A, Post Marcel W M, 20 mei 2020, In: BMC psychology. 8 , p. 1-11

Focus on autonomy:Using 'skills for growing up' in pediatric rehabilitation care

Hilberink Sander R, Grootoonk Anneke, Ketelaar Marjolijn, Vos Ieteke, Cornet Liselotte, Roebroeck Marij E 9 mei 2020, In: Journal of Pediatric Rehabilitation Medicine. 13 , p. 161-167 7 p.

All research output

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